No, I did not get the clot shotI’ve seen almost 10 different doctors in the last year (PCP, neurologist, rheumatologist, multiple orthopedic, pain doctor, sleep, chiropractor, acupuncture). Multiple blood labs, MRIs of brain, cervical, thoracic, lumbar spine, and 3 joints. All came back negativeI have Chronic tingling and burning (neuropathic pain) in almost my entire back side (back of neck down to and including glutes) my sides and stomach, although not my chest. Tingling and burning/pins and needles in both my arms and chronic joint pain in both wrists that feels like burning or searing pain. Chronic stiffness/soreness in my upper body (shoulder blades, shoulders, neck and chest) that feels like I’m sore from working out but it never goes away. All these symptoms get worse when it’s hot or humid and when there’s contact on my skin (rough material shirt, or when I lay or sit down and my skin is making contact with something) all these doctors are clueless because all my imaging and bloodwork comes back negative. 1 ortho, neurologist, and pain doctor are leaning towards the possibility of small fiber neuropathy. I have a referral to see a nerve and muscle neurology specialist who can refer me to get a biopsy to test for small fiber neuropathy but that isn’t until February next year. Yes I’m on a waitlist. Currently on 40mg cymbalta for chronic pain. It reduced my joint pain but not the burning. I’ve been trying literally over a dozen supplements and herb extracts to see if something works (amino acids, antioxidants, anti inflammatory like turmeric, salmon oil, etc) nothing has worked. 24mg daily of methylene blue has helped my fatigue. Before I was so tired that I had no energy or motivation to do anything. I was entirely reliant on caffeine. Now I have more energy and actually feel motivated and I’m in a better mood but still need caffeine or I’ll be so tired to the point of barely being able to function or even think clearly.
6 day supply of oral steroid reduced all my symptoms for about 5 days, then wore off. Which leads me to believe I have inflammation in my body. Doctors agree with me but they have no way of knowing what kind of inflammation or what’s causing it. Following that to its logical conclusion I figured that steroid injections may help my symptoms. I can’t take oral steroid long term, it’ll destroy your bones. I did 1 trigger point injection in the left side of my back and it reduced the stiffness there by at least 30-40%, but it’s very localized. The rest of my back still feels stiff. It reduced my tingling and burning a bit for about a week but now I’m back to where I was before. Clearly I have some sort of inflammation going on but it hasn’t show on any imaging I’ve had done. Bloodwork doesn’t suggest any autoimmune issues or deficiencies. Is my only next step to test for small fiber neuropathy? I’m out of ideas and that’s all I can think of. None of these doctor have any answers for me. They’re glorified search engines. Nearly everything they’ve said to me I’ve already seen on the first page of google or from a couple YouTube videos. I was hoping methylene blue might address the pain if it turns out so have mitochondrial dysfunction, but it has only had a positive affect on my fatigue (feels like a miracle desu), but no change to my chronic pain.I need to find answers and figure out a solution. Imagine feeling sandpaper rubbing on your back 24/7 or the feeling of getting an “Indian burn” (squeezing your skin and twisting). That’s what I deal with all the time and it gets worse with any movement throughout the day. I can’t keep doing this.
>>76770744This article might help in confirming a diagnosis more /sci/entifically...>Biomarkers in small fiber neuropathy>https://www.explorationpub.com/Journals/ent/Article/100433I'm on 600mg alpha lipoic acid and 40mg PQQ for nerve prophylaxis rn, and they both seem to have some evidence of efficacy for SFN from quick searching.
I’ve been taking 600mg of alpha lipoic acid for at least 2 months. Maybe 3, I lost track of how long I’ve been taking each because I’ve started so many at different times. Nothing has worked. I’m taking all the common stuff like D3, K2, magnesium glycinate, zinc, calcium, glycine, B1. I did the Kroger parasite detox for 2 weeks and didn’t see anything in my stool. Just took ivermectin today. Even if I do have parasites I doubt they’re related to peripheral neuropathy but at this point I’m desperate enough to try anything.
You sound like one of those ME/CFS niggasHave you tried getting your hands on BAM15? Maybe Dihexa?
>>76770744I have pudendal nuralgia i think and feel the same , constant burning in and around my sitbones and tail bone, have a lot more symptoms that are causing me to be bed ridden. Last 6 months, not sure what to do. Doctor said I have inflammation, but can't take ibuprofen since I have gastritis. Only thing that helps is just to lay in bed, on my sides or sometimes chest. I tried weed, it helps with the burning, but its only a temporary thing.
>>76770744Bro you sound like you have multiple sclerosis No cure but good luck
>>76771123MRI of Brian and spine already ruled that out. I had 2 neurologists tell me I definitely do not have MS.
I don't wanna derail your shit OP but asking for serious medical advice from people who barely lifthave a bump though
>>76771099Your problem shows up on MRIs or EMG, right? They were able to figure out which nerve and why it’s causing your pain? All my MRIs and bloodwork come back normal. Which is why I’m thinking I need to get a biopsy done to test for small fiber neuropathy.
>>76772287I can't even get an mri, I'm in canada our Healthcare is kill. Kind of left to treat this on my own. Wish you luck my friend, I know how hard it can be.
>>76772740Look into getting a trigger point injection (steroid injection) in the region where you have pain. If you have to drive to the states and find a place with reasonable self pay options. It’s worth a try. A doctor may even be willing to get you a steroid infusion.
>>76772859Thanks for the suggestion. I can't sit at all on my buttocks, it gives excruciating pain. I would have flew over seas already if I could.
Do you sleep on a mattress with springs?
>>76773140Yes. Should I switch? And why? I’ve never heard of a spring mattress causing something like this. I bought a $600 silk bed sheet set because the soft material feels so much better on my skin than regular cotton or sheets made of a blend.
>>76773559Don't sleep on anything that has metal/iron in it. And turn off all wireless devices when you sleep.
