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Sup fellas, hope you're all well, hoping to hear your thoughts on long covid and wtf I can do about it. Every other forum is useless or defeatist, /pol/ is always right.

Specifically, I've been trying to recover from the nuerocardiogenic/orthostatic sub-type rather than the fatigue/PEM/GI/MCAS sub-type, for which I am grateful. I caught a relatively moderate covid infection in April 2025. Despite recovering within a few days, I started to experience long covid symptoms within 2 weeks post recovery.

My main symptoms have been bradycardic heart palpitations/skipped beats, sudden acute breathlessness, blood pressure all over the place, air hunger, severe anxiety, hopelessness, sinking/hollow chest sensations and feeling prodromal, bier spots and redness in extremities, insomnia, one instance of prolonged globus sensation, one or two instances of temporary swallow paralysis, head pressure, "itchy nerves" in my throat and chest, etc etc.

However, all blood testing, 24 hour ekg and ecg have returned normal results, apart from a generally low BPM (40 during sleep), and good physical health even. Only abnormal blood test results have been borderline phosphate (0.76), elevated LDL (but normal HDL and triglycerides, good ratios), and high ferritin at 418/transferrin at 44% (but normal CRP at 1.7ish).

I'm stumped, what do you think? Would love to hear opinions, experience, advice, any medfags, etc. I have theories I'm working on, but mainly just counting on time atm.

Thank you for reading!
/blog
>>
>>517674667
I should add for context
>27m, unvaccinated
>Symptoms come and go, have presented in phasic clusters, and have generally shown an improvement trajectory
>Have generally lived a stressful life, ngl
>Life long insomniac, physical job helped me sleep normally
>Possibly undiagnosed ADD and CPTSD, but don't wanna be a whiny bitch about it
>Previously good fitness (and former high school athlete)
>Had just recovered from broken rib in early March (skiing)
>Have tried benfotiamine and various other supplements, minimal noticeable effect.
>Now looking at mind-body theories a la Dr Sarno, polyvagal theory (dorsal freeze fits me closely), possibly vestibular retraining as with cases of brain injury dysautonomia
Idk, lemme know if there's anything else I can add for context. Just kinda struggling to get through normal days at work and normal expectations, feeling like my heart could give out at any minute or that I'll have a severe episode of hypotensive breathlessness out of nowhere. I had one of those in July and my boss called an ambulance, took me all of August just to get from reclined all day to walking upright for 20 minutes. I started taking benfotiamine around this time as well, and it did appear to ar least coincide with improvement in symptoms, but I don't have any other symptoms or reasons for thiamine deficiency. Not a massive drinker, generally prefer a keto/paleo diet.

Interestingly, lack of sleep and lack of food have provoked symptoms, but other times I have been on holiday chilling and still had severe episodes, so who knows.

Normal POTS interventions do nothing at all, but sugar and coca cola have been the only things I've found to help intervene. No other symptoms of hypoglycemia, pre-diabetes or diabetic neuropathy etc. I'm strongly leaning towards these being neurological in nature, hopefully functional given my symptoms come and go inconsistently.
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>>517674667
You've got something else going on, my dude.
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>>517674667
Unironically get an MRI asap.
>>
1 mg aspirin per kg of body weight per day
vitamin D daily recommended dose
500 mg NAC per day when you've been out of breath for more than a day
light exercise (walks, slow bike rides)
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>>517674667
My dad has been dealing with something like this recently, along with nerve pain though.
Turns out his body has developed an auto-immune response dysfunction, his immune system went crazy after he got covid. Immune system has not gone back to normal since. Now it's attacking things and triggering responses to normal things in his body.
After three years they finally figured it out and now he has to get intravenous drugs to suppress it, once a month. They also put him on a cpap machine to help with his breathing during sleep.
Sorry I dont have much technical details, but have them run tests on your immune system responses. My dad's was constantly attacking him in waves and that can deteriorate and inflame your body long term. Its been about 4 months since he started the injections and while not back to normal, its like night and day.
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>>517674667
Don't self diagnose, visit your GP and have them do it. You may have a much worse underlying issue you're confusing for long covid. Self diagnosing and self medicating could lead you down a rabbit hole of making it worse. You can always get a second opinion if you feel your GP isn't taking you seriously.
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>>517674895
What makes you think that?

>>517675536
I'll consider it, do you mean on my brain?
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>>517674667
500mg Vitamin C and sitting outside for 30 minutes every day.
Give it some months.
Happy days.
>>
Make sure to jab your baby.

https://www.reddit.com/r/montreal/comments/1nufww3/o%C3%B9_faire_vacciner_un_b%C3%A9b%C3%A9_contre_la_covid/
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>>517676376
10 steps ahead of you friend, seen a GP, a consultant cardiologist, electrophysiologist, a bunch of alternative health types, etc. I have an appointment booked with a neurologist who specialises in long covid dysautonomia later this month. My bank account is hemorrhaging though, the NHS isn't an option due to waiting times. My GP said it would take 12-18 months just to see a cardiologist
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Never had it so I can't speak from experience. Here are some post vax protocols that also apply to so called Long Covid. Sorry that you got it anon.

A little bit unrelated but I cured my drug induced arrhythmia and high blood with a low carb diet. Meaning eating mostly animal protein and animal fat (including seafood) and the minimal amount of veggies (cooked), no sneed oils.

Also you should look into breathing exercises, that also helped me.

I've been hearing about this "Augmented NAC" which is supposedly like 80% more effective than normal NAC, you might want to look into that.
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>>517676636
>My GP said it would take 12-18 months just to see a cardiologist
Wtf, are you serious?
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>>517676636
>the NHS
Oh I hadn't looked at your flag. I have no idea how to navigate the british medical system, with wait times like that holy shit no wonder you're self medicating. Like the other guy I'd say get more sunlight if you can, vitamin C from food sources always helps and drink more water, might diminish the symptoms to the point that you can better pinpoint what you need.
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>>517676726
>arrhythmia and high blood
high blood pressure*
>>
>>517676351
Man I am truly sorry to hear that anon, that sucks big time. I hope I continues to get better and better. Next doc I see, I'll ask about autoimmune testing. It's unlikely as I have no symptoms of MCAS or histamine intolerances, but I will absolutely not rule it out until a test confirms or disproves it, thank you.
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>>517674667
>/pol/ is always right
>>
>>517676176
>>517676571
>>517676950
>Vitamin C
>NAC
>Sunlight
>Walks
Check check and check
I appreciate it anons thank you, but I have indeed been employing these already. They are probably the reason my inflammation is low in blood tests, so that's good. But they don't appear to affect my physical symptoms
>>
>>517676376
AI cant come up with anything substantial, its first suggestion is anxiety disorders

covid has fucked a lot of people up in ways we dont understand yet. my parents are nearly both dead now after being in perfect health and barely reaching 60 years old
OP probably does have some anxiety problems but thats probably a result of his body being stressed out in general and homeostasis going out of whack, from covid and our lifestyles and food all being shit
>>517677151
also stop eating seed oils, buy a lot of beef tallow and good iron pans and learn to cook
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>>517676726
Damn, keto is already my bag hahaha, I too am fond of the low carb diet as is. I've actually had to increase my carb intake since this has come on, as it seems to have a positive effect, but I mostly prefer to get this from fruit. I'm glad you managed to cure your arrhythmia man, well done. I'll try some of the post vax protocols though, they might actually help. It's hard to know if this is due to viral persistence, especially in my case. The most up-to-date theory I can find is that the nervous system gets stuck in panic mode due to viral inflammation, and then fails to return to parasympathetic after the body has physically healed.
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>>517676351
> Turns out the vaccine made the body develope an auto-immune response dysfunction
>>
>>517676827
>>517676950
>rNHS
Yeah, it's fucked lol. Good people work in it, but it is pointless if you are not literally dying. I'm not a fan of socialised healthcare, but it's good if you're absolutely desperate and broke. Luckily private healthcare isn't too unaffordable for the most part, as is private health insurance, but it can add up very quickly.
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>>517677222
Checked, nice digits.
I do have anxiety now, gotta admit, but it started AFTER symptoms, I was emotionally fine even up until June. I had a really bad episode of symptoms where my boss called and ambulance, took me about a month to physically recover, that's when the anxiety started. But it doesn't appear to have a bearing on symptoms directly, at least not with any measurable consistency. I should probably see a shrink about that, it was a little traumatic.

Luckily the cardiologist I saw was very sympathetic and immediately gave me the long COVID dysautonomia diagnosis. After I got an ecg ultrasound, he said I have the heart of someone 10 years younger, so that's reassuring.

And don't worry, I don't think I've ever used seed oils, I'm pretty careful with all that. Switched from EVOO to organic grass fed and finished tallow about 6/5 years ago, I cook with stainless steel or carbon steel, and my diet is like 80% animal protein with cruciferous vegetables, rice, potato and fruit. I do have junk food and alcohol now and then, but I try to keep it to a minimum. LDL cholesterol (saturated fat) was all that showed up as high on blood test, but my hdl, triglycerides and ratios were all great, so I'm not worried.
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>>517677222
Also I'm sorry about your parents anon, I will say a prayer for them tonight
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>>517677420
https://www.youtube.com/watch?v=31f8RmELfMs

You should check that Augmented NAC stuff, here's a video of someone who has used it on herself, her husband and her patients. I know it's anecdotal but I've seen a few videos of people claiming it has done magic to their condition.

I think it's made in Germany or Switzerland maybe, it's a bit pricey but it might be a game changer.

I know the Vax Protocol stuff is a long list and you can't possible take all of them but try the essential ones from the first line that are available and wouldn't break the bank.

And just from experience - breathing exercises really helped me after I quit stimulants and my body and system was wrecked after years of abuse, along with cold showers.

>>517677576
I mean yeah socialized healthcare is not bad if you don't invite the whole world to your country, a combination of private and social is a good idea so everyone has a choice and the people who can't aren't left to die.
>>
>>517677552
Don't worry, I'm unvaxxed, but I almost certainly got infected with a vaccine escape variant from someone who is vaxxed, given I have to commute to central london.
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>>517678182
>but I almost certainly got infected with a vaccine escape variant from someone who is vaxxed
That's what's so maddening, when you vax everyone during a pandemic you literally force the virus to mutate and become stronger.

I will never forgive them for what they did.
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>>517674667
Its probably related to brain swelling (and thus damage) from the infection, and if so, it could take a decade to rewire your brain back to normal function. If Im right, there isnt much to be done for it.
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>>517674723
>27m, unvaccinated
Follow the FLCCC protocol. It's ivermectin, zinc, and some other stuff that I don't remember off the top of my head.

https://imahealth.org/protocol/i-recover-long-covid-treatment/
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>>517678434
Yeah, I already posted it.
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>>517678172
I'll definitely check it out, thank you fren. Afai understand it, NAC is a precursor to glutathione, which your liver uses to filter out toxins, right? It might help indirectly even if not directly targeting my nervous system.

The breathing exercises I will also look into. I practice buteyko already, are there any you particularly recommend?

>>517678350
It is absolutely infuriating, isn't it. We could have been one and done in a few months, but instead now we have to contend with this shit 5 years later. I wouldn't be in this position if it weren't for hylic normie lack of courage.
>>
>>517678434
>>517678434
Cheers lads, still appreciate the input
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>>517678735
>NAC is a precursor to glutathione, which your liver uses to filter out toxins
Yes exactly

>are there any you particularly recommend?
I've been doing the Wim Hof method for 7-8 years now. BU it's very important to start with the easy stuff for a month-two and gradually up the anty until you feel comfortable and you understand and feel what you are doing - there's videos on youtube. This method incorporates cold and cold showers but don't even think about that for the first half year or year. Master just the laying down and breathing first. There are videos on youtube. I know he's a cooky guy but I swear If it wasn't for that I would be in a worse place now.
>>517678735
The whole thing just makes me angry. So did you get covid for the first time this year?
>>
>>517677552
Is there a way to sue these bastards if someone was damaged?
They need to take accountability.
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>>517678172
Is NAC supposed to induce the shits? I took it for a couple days and shit like crazy. Maybe free toxins leaving? I've got IBS, thanks to two rounds of damn Cipro. I've added MSM to my supplements, it's supposed to help a lot with all kinds of inflammation.
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>>517674667
Sup friend, first of all have you taken a look at your thyroid?

I have been going through similar phases during the past few years. I experience some of your symptoms for a few months every time I get sick basically, don't know if it's COVID or not, definitely it's not debilitating like the ME/CFS types. I have no trouble lifting heavy weights but if I run long distances I can feel my body getting weak.

Anyway, I'll keep it short: the thing I found that helped me the most was creatine supplementation. Getting rid of coffee also helped. I have a feeling that for some reason COVID messes with your serotonin system or something like that. Also try getting some sunlight and be at least somewhat physically active. It's weird, nobody knows what exactly to do about it.
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>>517679876
>Is NAC supposed to induce the shits?
yes, i think it can be a side effect, it does get rid of toxins, was it diarrhea?
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>>517674667
I've been fucked up by covid for 4 years. Exactly one (1) thing has helped me.
Getting a different strain of covid.
Completely knocked the old strain out of my body. Head and sinus symptoms went away entirely, after my body cleared the infection.
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>>517679439
Man, at this point I'll try anything, Whim Hof seems like as good a direction to go as any. Thank you brother.

And this is probably at least my 3rd or 4th time catching covid. I first caught it in 2020, delta wave, and I did have heart palpitations after that too, but they gradually cleared up after 12 months or so. The other times I caught it, no weird side effects. This has really fucked up my year, ngl. But I have to remind myself that others have way worse situations and that at least I'm otherwise ok. It's just hard to live when
>>
>>517680868
Have you hit yourself with ivermectin, fenbendazole, and bromeline?
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>>517680028
Yknow what man, you just fuckin read my mind. As it happens, one of my only slightly weird results was borderline low phosphate (despite high dietary intake), and I've been reading that creatine is supposed to help with phosphate recycling. Additionally with the serotonin, I think there is definitely something fucked up going on with my HPA axis in general, extending to serotonin, dopamine and norepinephrine. Whatever is happening, that is definitely one of the mysteries I've circled around. I'll give creatine a go then, thank you anon.
>Get rid of coffee
:'(
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>>517681107
I know that shit sucks, anon, especially if you are young and have things you want to do, but I've grown somewhat accustomed to the idea that I'll be getting this once per year and I'll recover after a couple of months. It's fucked up.
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>>517674667
Should of worn the mask chud.
https://www.youtube.com/watch?v=4DxaeE_VmU4
>>
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>>517680868
>Thank you brother.
No worries fren, just remember start with the beginner stuff and build up on that.

>And this is probably at least my 3rd or 4th time catching covid. I first caught it in 2020, delta wave, and I did have heart palpitations after that too, but they gradually cleared up after 12 months or so. The other times I caught it, no weird side effects. This has really fucked up my year, ngl. But I have to remind myself that others have way worse situations and that at least I'm otherwise ok. It's just hard to live when
Man I'm sorry about that...I don't know how I haven't caught it yet, and I work around lot's of people, every weekend I'm around hundreds of people. Maybe it's because only 30% of Bulgarians got vaxxed or idk..But Idk exactly how the mutations work.

Oh and also fasting helped me. Again I started light. Like 24 hours every few weeks, then maybe 36 every two weeks. Now I do it every week or two for a day. I haven't done the long ones because I eat ones or twice a day, and I'm not obese or anything. But I always feel good after I do it.
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>>517674667
I have the same problems as you OP just my blood tests indicate I'm suppoedly perfectly healthy meanwhile I feel like I'm suffocating every day, tightness in throat, blockage in the back of that is physical (not mucus blocking it's like the structure of things back there blocks it), panic attacks, weird temperature fluctuations, strange sensations, severe insomnia, etc. Going to doctors so far just results in them telling me they can't find anything wrong at all.
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>>517674667
>bradycardic heart palpitations/skipped beats,
>sudden acute breathlessness,
>blood pressure all over the place,
>air hunger,
>severe anxiety,
>hopelessness,
>sinking/hollow chest sensations
>feeling prodromal,
>bier spots and redness in extremities,
>insomnia,
>one instance of prolonged globus sensation,
>one or two instances of temporary swallow paralysis,
>head pressure,
>"itchy nerves" in my throat and chest, etc etc.
Breathing and heart issues are likely to fuck up your deep sleep and exasperate all your issues, so I'd recommend an in-lab sleep study if you haven't already (home tests don't account for UARS)
>24 hour ekg and ecg have returned normal results, apart from a generally low BPM (40 during sleep)
Did you see spikes during sleep?
>>
>>517680028
>>517681107
Also I forgot to add, my thyroid is seemingly fine. Test is a little lower than I'd like at 500, but I put that down to severe anxiety, stress and insomnia these last few months. Under normal circumstances, I'm a randy bastard and put on muscle easily, so I believe that will self correct when I feel like myself again.
>>
Anon I wish you the best. I don't have much knowledge about the POTS/orthostatic issues from covid. I think your heart is fine, it's a nervous system issue.
Besides the flccc protocols, there is creatine and nicotine - but I am not sure you're still infested with the S2 protein, etc. Sounds more like residual damage not the uncleared infections you see for the CFS long covid.
I really wish I had become a doctor to help people like you.
>>
>>517674667
Try water fasting for at least 3,5 days
You might see benefits after 2,5 days, in this case continue doing it
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>>517682220
My resting heart rate is 43. I was doing triathlons before this year my health really nosedived with weird random shit I can't figure out that is similar to OP.
>>
>>517674667
You need to fast for at least 3 days to begin autophagy
Drink only water.
Try to make it at least 5 days
Water and coffee, that's it
No sugar
Take some OTC ivermectin
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>>517681061
No to ivermectin and fenbendazole thus far, perhaps I should have tried those during the acute phase. At this stage, I don't appear to have any inflammatory markers that would indicate prolonged viral infection, but I did still eat a lot of pineapple and take nattokinase, as well as hawthorn.
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>>517674667
Have you done stool test?
Have you tried the basic treatment for MCAS (OTC stabilizers + h1 h2 antihistamines?)
Have you tried nicotine, nattokinase and the other common substances?

Here is a fantastic doc on LC: https://static1.squarespace.com/static/66684df3f978e167fbd7fd03/t/682dcde6a203152da1021bd1/1747832299148/Long+Covid+Prevention+and+Treatment+Final.docx.pdf
>>
>>517682174
Did you get covid or the shot ever?
>>517682478
I agree, doesn't sound like your carrying a viral load/S2 load still.
>>
>>517680609
Yep!
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>>517682529
>nattokinase
I think that turned out to not be effective, was that the soibean stuff
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>>517682529
>MCAS
Good idea anon. OP that might explain the itchy nerves and breathing problems.
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>>517680028
>Anyway, I'll keep it short: the thing I found that helped me the most was creatine supplementation.
Have you looked into (genetic) methylation issues? Creatine is a much needed end product of some methylation processes so taking it can ease the burden on your methylation system and allow it to prioritize other processes instead. So it could be a meaningful sign.
>>
>>517674723
>>27m, unvaccinated
should have took the jab
>>
>>517681668
Covid really did a number on my 20s, I was 22 when it all started. Couldn't get a job out of uni, ended up labouring. I managed to work my way up to qualifying as an electrician, so not all bad, but still a lot of stress. I remind myself that my grandpa spent 17-22 as a conscript getting shelled in a trench, so it could be worse.
Do you think it will eventually stop recurring for you, anon?
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>>517683195
>should have took the jab
obviously not!
They still got covid, even more
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>>517681107
Most long haulers have a similar dysbiotic profile with low bifido, lactobacilli & akkermansia with a variety of harmful overgrowths. Dysbiosis leads to HPA problems and neurotransmitter imbalances, most serotonin is produced in the gut for ex. Histamine and mast cell reactions will further mess with serotonin, cortisol etc.

For nervous system retraining look into TRE, it's very potent. Someone has written a good FAQ on plebbit: https://old.reddit.com/r/longtermTRE/wiki/index
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>>517682174
Go on low histamine diet, or even an elimination diet. OTC mast cell stabilizers like quercetin, or luteolin. H1 and H1 antihistamines. You're very likely dealing with mast cell related problems, possibly histamine intolerance too. You will see improvements in a week or two. Order a long covid stool test from biomesight and fix your gut, it's usually the cure.
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>>517683718
H1 and H2 antihistamines*
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>>517682116
The Bvlgarian Bvll is immune to pathetic urban viruses and propaganda. It might just be genetic luck of the draw, I know some races were less vulnerable than others. Some (((significantly))) less.

Fasting I used to do routinely, but can't since this all started as it causes my symptoms to flare. I have to eat constant small meals throughout the day, it's really fucking annoying.
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>>517674667
If these are actually long COVID symptoms, they're likely the result of vagus nerve damage and there's nothing you can really do about that.
That being said, a lot of the time what people think is heart/anxiety is actually just indigestion. Just take a couple of TUMS and see if that helps.
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>>517676397
These symptoms aren't consistent with, "long covid" or a viral infection. I'm sure you've had panels drawn but it sounds like you're in the throes of a hormonal or autoimmune problem. That could've be brought on by a particularly bad illness. You described redness and bier spots, that's a dead ringer of auto immune disorders. Idk man, I pray you don't have an auto immune disorder, but the first thing your GP should've checked off is your thyroid hormone levels. If you don't see TSH or TH results in your labs, you should ask to get that panel drawn, then maybe white blood cell counts while you're experiencing a break-out.
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>>517677151
Don't take NAC. NAC doesn't help and all it does is make you suicidal after 1 month of taking it.
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>>517684386
NAC helped me tremendously
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>>517684223
His whole symptomology is typical LC. Bier spots are not a dead ringer of autoimmune disorders.
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>>517682220
Sleep study would probably benefit me in many ways, I'll look into that. Only problem is it's bery expensive, but health is wealth as they say.
>Spikes during sleep
I only got one look at the graph, but it looked pretty clean. Some variation, but no dramatic spikes during sleep. I have been experiencing inappropriately early waking the last few months though.
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>>517674723
Change benfo to cdp-choline for 9-18 months also add some source of essential fatty acids and lysine, also organic selenium supplementation for a month, further you might also experiment with a month of NAC supplementation and 3 moths of Gotu kola or lions mane
Also taurine is a friend
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>>517682174
I feel your pain anon. Lowkey you hoped they'd find SOMETHING that might explain it, right? If you haven't already, look into polyvagal theory, TMS and the safe and sound protocol for people who have experienced long covid, it seems like this could really just be an issue of functional nervous system dysregulation and the way down is to repeatedly convey safety to the ans. Wagmi, memefren
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>>517683195
I absolutely caught this from a vaxxie, m80
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>>517682529
>>517682981
I will absolutely look at these, thank you. I'm not convinced MCAS applies to me as I don't have the usual symptoms of histamine intolerance, no nausea, no GI, no headaches, no fatigue or malaise, etc. I do occasionally get very slight hives while at work, as well as pimples on my wrists of places, so there could be something environmental there, though could also be stress/association. I will look into autoimmune tests before I rule it out. White blood cell counts and inflammation markers were all in normal ranges
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>>517682782
Have to say, I took it for about 8 weeks and didn't notice any difference
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>>517683042
I haven't, but I feel like at my age it would have become apparent already. My symptoms definitely started as a direct result of a covid infection, 100%. I've tried taking methylated B complex with no effects, other than ribo-urine
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>>517686110
MCAS can cause very diverse symptoms as mast cells can release so many different inflammatory mediators almost anywhere in the body. Many have gotten their POTS/dysautonomia symptoms under control with mast cell stabilizers, antihistamines and avoidance of trigger foods.
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>>517683569
The only thing is my gut health appears good by all accounts. No bloating, normal stools, regular expulsion, I drink kefir semi-regularly, no food intolerances whatsoever, etc. Not saying it's not possible, but I can't say anything in my symptom profile points in that direction
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>>517686487
Fair enough. My thinking was that lifelong insomnia and ADD can often point to methylation issues.
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>>517683718
>Order a long covid stool test from biomesight
This I will do just to check, cheers anon
>>
>>517684223
Thyroid and hormones are all fine, and my symptoms are definitely a typical set of LC symptoms as >>517684984 said
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>>517686692
The long covid one is the same as the regular test but much cheaper, here is the link: https://shop.biomesight.com/products/long-covid19-study-gut-microbiome-test?pr_prod_strat=jac&pr_rec_id=0be16b926&pr_rec_pid=5725934780566&pr_ref_pid=4545515716740&pr_seq=uniform
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>>517681107
I cut out caffeine completely and feel great for doing so
>HPA axis
mirtazapine might help, GP can give it for anxiety too but you have to specifically ask for it and explain why you dont want serotonin or some other med
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>>517685596
Interesting suggestions, definitely ones I've been looking at. I'll take a swing down those rabbit holes, dziekuje bardzo
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>>517686664
Ahhh, interesting. I'm willing to take your advice on this and get genetic testing regardless, I definitely seem to be "low dopamine"
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>>517686776
do you get regular sleep and early nights (>10pm is late)? exercise? healthy diet (whole fruits, vegetables, good quality meat/organs, no processed crap, low sugar, not high salt)
also cut caffeine (and nicotine if you do that) you will feel better (after >1 week of feeling pretty crap - I had blurred vision and severe headaches for a week after quitting caffeine and couldnt drive or operate machinery)
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>>517686821
This is comprehensive for sure. Thank you again anon, will definitely look into this
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>>517687119
Only problem is I'm experiencing low sympathetic ramp. If I were tachycardic, downers would help, but I need uppers if anything. I have a small coffee like every 2-3 days but it does absolutely nothing, doesn't even spike my heart rate. I really wish it would, I was disappointed to learn it's not really a stimulant, just an adenosine inhibitor
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>>517687247
For sure. Getting your genome sequenced is a pretty good investment anyway since your genes don't change. It's data that will stay relevant for the rest of your life.

>>517687539
Np, hopefully you'll find a way forward. I'm positively surprised at how well your thread was received to be honest. A year ago I mentioned my own LC issues here and got flamed the shit out of haha.
>>
Sup faggot, I cured a billion incurable chronic diseases that went debilitating with a virus infection [pre-covid].

Here goes:

0. Stop being a faggot, you don't have 20 odd named conditions, you've got one or two things going wrong in general - figure out the fundamental problems. Doctors won't help you, besides critical care.
1. Optimize digestion and nutrition while looking for triggers - start with protein isolate smoothie, salted boiled egg yolk + followed by low fodmap fruit/veg plus as many anti inflamamtories [ ginger, cinnamon, raw garlic etc] as you can stomach - this is your safe baseline. For extra calories you will probably tolerate raw honey and fresh OJ

slowly reintroduce simple healthy foods and PAY ATTENTION to triggers, ease digestion where possible by blending etc

2. Slowly build up exercise tolerance starting from simple stretching and then some resistance band/bodyweight exercises, exercise as much as possible within your limits, esp after protein intake. Other practices like saunas, fresh air etc do as much as possible obv.

3. Meditation and breathing exercises : super basic is the Isha Kriya on youtube for example, complete it and build up from there.

4. Eliminate toxins in your daily environment, go and ask chat gpt about it while listing your circumstance, cutlery, water etc

Keep optimizing the above: digestion and nutrition, exercise, stress relief and remove any toxins exposure and you will 10000% heal, there is no other option.

Covid was just the last straw, you were fucked before it. Fix your fundamentals and you will heal and be better than ever.
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>>517687423
>regular sleep and early nights
Admittedly not as good as I'd like. Even if I manage to sleep on time, my body wakes me up after 6 hours at the absolute max. In the past, any time I've slept longer is due to abject exhaustion.
>exercise
I was pretty active prior to this, sports and manual labour. Since April, exercise hasn't been viable, but I would like to get back to it.
>diet
Is good, I've been on the avoiding processed crap bandwagon for years. Annoyingly, sugar is the only thing I've found lately that will actually help my symptoms, indicating there is some nerve dysfunction. Doc told me to eat high salt for POTS symptoms, but it does nothing so I stopped bothering.
>Caffeine
Annoyingly does nothing. I cut it out for 2 months with zero difference, so I started drinking it again for my mental wellbeing.
>Nicotine
I tried it recently as a therapy for this, but again no effect, 2-3 tabs of 2mg gum in a day, stopped bothering
>>
>>517685596
no offense but why recommend that crap instead of food ?
>choline
eggs, kidney beans, brussel sprouts, brocoli
- supplements are fair enough if taking selank or something I guess
>selenium
brazil nuts
>fatty acids
sardines, avocados, peanut butter, oysters, walnuts
>lysine
beef, chicken, eggs
>gotu kola and lions mane
fair enough these have unique properties
sour cherries are also good for cognitive function, as is shilajit and saffron
>>
I don't have the energy to do a long post right now, but long term fasting is something you want to look into for its effects on the immune system.
You need potassium and sodium salts for anything past 4 days though, so I normally only do 3 days / 72hrs fasting.
>>>/fit/ normally has info there for more.
The immune system is able to be reset usually.
You'll be fine once it calms down.
>>
>>517687786
Thank you for all your input anon, you've been real generous, I appreciate it.
>I'm positively surprised at how well your thread was received to be honest.
Me too lmao, seems like the last few humans on the board got sick of the bot bbc and bait shill threads.
>A year ago I mentioned my own LC issues here and got flamed the shit out of haha.
Fuck man, sorry to hear that. How are you doing these days, did your interventions help?
>>
>>517688331
Literally my diet desu, aside from protein
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>>517688123
I respect the enthusiasm memeflag, thank you. Fortunately this is pretty much already my approach, but it's nice to know I've been on the right path
>>
Oh one more thing.
Everyone suffering from depressed mood for no reason should look into iodine supplementation.
Just because your thyroid levels are fine doesn't mean your thyroid is fine. Thyroid needs iodine.
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>>517688378
Thanks man, appreciate the input. Unfortunately can't fast right now as it directly provokes symptoms, but I'm fully onboard with keto and autophagy in general
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>>517674667
I have had this crap for 2+ years. Finally starting to hit 70-80% recovered. In the beginning one of my weirdest symptoms was not breathing automatically enough. When I would sleep I wouldn't breath. Out of desperation I put on a nicotine patch. That helped more than any doctor or medication. It helped immediately. Eventually I had a sleep study which showed I have developed central sleep apnea. Now I am on a cpap machine. Hasn't really helped my symptoms but I guess it stopped the central episodes. The nicotine patches seem to stop them too but if I stop using them it comes back.

I had a bunch of other stuff too like peeing blood for 10 days and a seizure type event my left hand would turn blue and my left neck area would swell up.

info on nicotine patches:
https://linktr.ee/thenicotinetest

I feel like I probably messed up with the nicotine patches though because they made me feel a lot better in like 3 days but then I exercised hard and made everything worse. So if you feel better don't go crazy give it a week or more before you do anything physical.

Also it seems people with this crap have no bifido lacto bacteria in their gut. There is a test you can do to check called biomesight or you can cheap test it with ph strips mix some doodoo with distilled water and make a doodoo slurry and test if the ph is high like 8+ which indicates you are probably low in those beneficial bacteria because they produce acid. Ask A.I. it will walk you through the process if you get to that point. The stupid official tests take so long and are kinda expensive. I did it and it said I had no bifido lacto. Then I PH tested mine and it was 9. I took seed probiotic and it dropped to 7 quickly like in a day. Didn't really notice any symptom change yet.

Flush niacin seems to help too but it makes you feel like you have sunburn on the inside for an hour. Cold dunks feel good not sure they actually help.

Good luck.
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>>517688475
My nervous system fragility is much better. In the beginning even looking out of the window into the distance felt scary. My body felt like it was made of thin paper. Now I'm pretty relaxed most of the time. However my food and pollen intolerances have become worse with each re-infection. During the pollen season this year there were periods when white rice was the only thing I could tolerate eating without triggering immune reactions. I have a major klebsiella overgrowth in my gut at ~200x above the reference range which I'm about to hit with some herbal tinctures and targeted prebiotic fibers and probiotics -- I believe once I get it under control things will get much easier since klebsiella is a major producer of inflammatory endotoxins. The most frustrating thing so far has been knowing all these great ways with which I could improve my gut yet being too sensitive to tolerate any of them.

>>517688123
This is pretty good general advice.
>>
>>517688822
If fasting ever promotes symptoms, then force it during a break or some other time you have time off. It's like saying you get dizzy near bedtime so you just don't sleep lol.
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>>517687673
>low sympathetic ramp
not quite sure what that is, as in you're always tense or you dont react to stuff?
ashwaganda might help, or anything that reduces/inhibits cortisol, blueberries are also good - if its freeze/anxiety related then for me mirtazapine was great, made me calm and focussed and not paniced all the time, altho short term stop gap fix and i stopped taking it after a while,
>>517688192
6 hours is plenty if you dont wake up tired, if the quality is good then who cares - if you wake up tired, or interupted, or cant fall asleep, cant wake up - those are all problems that have a root
>I was pretty active
active to the point of possible fatigue syndrome? did you work out before/after manual labour?
>sugar
fair, if you dont already look into food combinations that stop spiking blood sugar - might help, otherwise its good anyway
>nerves
lionsmane for sure its the best thing for nerves, cordyceps is good, coffee tbf is a nerve protective, hawthorn is good for things related to the heart and nervous system so maybe try teas of that
in terms of supplementing and eating to aleviate symptoms it can take a while, so sometimes if its not making things worse in anyway its good to keep doing whatever you can be bothered to keep doing
>>
>>517688620
I saw that your diet involves all kinds of food, you have to start from the extremely safe baseline, as your body is 99% overreacting to something.

I mentioned protein isolate as it's nigh impossible for your body to react to it. Drop all the bioscience of whole foods or whatever - processing can be good if it eases digestion

Go all the way for a few days and then reintroduce, you will find yourself reacting to something for sure.

It could even be indirect such as beans causing fermentation causing too much histamine etc.
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>>517688538
>aside from protein
???
>>
>>517674667
lay off the Tylenol bro
>>
>>517685292
Heart rate spikes are a marker for sleep arousals. As you reach deeper sleeping states, your breathing and muscles relax further, but if anything weird happens, your body will jolt you out of those states (this depends partly on how sensitive you). Few spikes does not rule out issues, but it's one of the indicators. Others are a low amount of measured light/deep/rem sleep, a high amount of breathing issues like hypopneas/apneas/rera's/etc and oxygen desaturations below a certain threshold.

Insomnia is also an indicator of sleep disrupted breathing, because it could mean your body has associated sleeping with a stressful state. A lack of restorative sleep can mimick ADD and POTS symptoms.

Do you dream very little or excessively?
How energized do you feel at different times of day?
Does your breathing get better or worse in different standing/sleeping positions?
Do you ever take naps?
Where do you feel head pressure?
How often do you wake up during night?

I'm also wondering about stuff like TMJ, intercranial pressure or a compressed nerve, but I don't really know much about those.
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>>517689203
Blimey, you went through the wringer. Glad you're feeling at least majority better anon. Could you tell you had gut dysbiosis? Bloating, diarrhoea, gi symptoms, etc?

I tried nicotine, unfortunately it did fuckall. I was really hoping it would at least do SOMETHING. Never mind.

Thanks anon, good luck to you too with the last 20%
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>>517689630
Well there were no spikes above 50-60bpm, but I'll still see about a sleep study. SpO2 is always 99% during the day, but I haven't measured it during sleep. My insomnia is generally psychogenic I think, I sleep fine if I don't have to get up for work or if I'm on holiday. Generally wake up feeling well rested if hours are sufficient.

Very little dreaming normally, but very vivid if I wake up and go back to sleep in the early hours.
Generally my energy is fine, I don't really get fatigued or sleepy during the day. I did have two weeks of inappropriate sleepiness after starting to take benfotiamine, but that subsided, and I haven't taken any in 5 weeks or so.
Head pressure is really behind my face/sphenoid area and down into my atlas/cervical. I never usually wake up in the middle of the night, I tend to stay asleep.
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>>517689362
>not quite sure what that is, as in you're always tense or you dont react to stuff?
No, it's like my heart rate or volume won't increase appropriately to meet physical demand, despite all physical tests indicating my cardiovascular health is great, leading me to think it's neurological
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>>517689355
If fasting made your heart feel like it's about to stop, you would avoid it too lol
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>>517689497
I promise you I have already tried diet elimination, nothing in my diet provokes any symptoms, my gut health is fine
>>
>>517690327
Did benfotiamine result in any improvements in baseline after the two weeks of sleepiness? Or did you just revert back to how you were before?
>>
Does anyone know how to cure Post SSRI Sexual Dysfunction (PSSD)? It's a condition caused by taking antidepressants, antibiotics, ashwaghanda, antipsychotics and other substances that modify neurotransmitters in the brain. The main symptoms are genital numbness, low libido, erectile dysfunction, sleep disturbances, cognitive issues, etc. It's similar to Post Finasteride Syndrome (PFS) and Post Accutane Syndrome (PAS).
>>
>>517674667
Everything you described like the phasic symptom clusters, the weird cardio-neuro stuff, air hunger, vagal flutters, doom sensations all points to post-COVID central dysautonomia, especially involving the vagus nerve and brainstem regulatory loops. It sounds like your wiring is fucky. It's glitching out maybe bc of a combo breaker

-Nervous system dysregulation (polyvagal freeze, dorsal vagal collapse)
-Mitochondrial/nutrient bottlenecks (esp. thiamine, magnesium, phosphate)
-Long-term stress/CPTSD background sensitizing your system.

Post-viral dysautonomia maybe affecting the vagus nerve and or brainstem regulatory centers. Clue there is that your symptoms worsen with stress, underfeeding, and lack of sleep. You could also look into Thiamine (B1) dysregulation; you mentioned Benfotiamine helpoed slightly and feeling better after having a soda. Covid has been shown to impair thiamine transport in some cases. COVID has been shown to cause microglial activation in the brainstem and upper spinal cord, sometimes leading to disruption of baroreflex loops, vestibular-induced orthostatic symptoms, visual motion sensitivity, breathlessness, panic episodes, etc. Hang in there
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>>517690777
It coincided with an improvement in orthostatic tolerance, but I can't say for sure if it had a direct effect. Also I misspoke, the sleepiness only really lasted a few days. Immediately after taking it, I had a brief swallow reflex paralysis, but it was momentary. After a few weeks of supplementing benfo, all it seemed to do was give me air hunger (made my sinuses nostrils feel blocked even though they weren't), head pressure and general paraympathetic dominance. BUT, the orthostatic symptoms did gradually recede. After stopping taking Benfo for 4 weeks, the air hunger disappeared but the orthostatic symptoms have slowly come back a teeny, weeny bit, though nowhere near as bad as before. My best guess is it did have a direct effect on neurotransmitter metabolisation, but not enough to indicate that thiamine deficiency is a direct cause of my symptoms, especially as I have no indicators of neuropathy and my diet is already high in thiamine
>>
>>517691145
Thanks anon, that's a good assessment. Be honest now sonny, you weren't usin good ol ChatGPT were ya?
Icl, ChatGPT has been absolutely instrumental in keeping me sane through all this, it is humanities finest research tool when used correctly.

Interestingly, vestibular rehab is one of the angles I've been considering here. Some people with brain injuries have symptoms very similar to mine, but the distinction being that mine are not always present.

Still, I appreciate the sympathy, thanks fren
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>>517691145
https://www.reddit.com/r/PSSD/comments/1nt0jjs/pssd_clarity_in_the_debate_immunity_plasticity/

Hey do you mind reading this post on plebbit and giving your thoughts? You seem pretty well versed in this subject matter.
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>>517689776
I never really had any gut pain or discomfort. One of my first symptoms was like pooping clear snot for a day or two. After that it was months and months of soft serve weird colors like green and yellow. Then I did the biomsight test and it said I didn't have any bifido lacto. So I took an insane amount of pre and pro biotics. I even tried something called bumbiotics which you shove up your ass. The ass pills seemed to have a positive effect but it didn't stick. Like it returned my poops to half way normal like you could see how far up the turd the bumbiotics made it but it would never stick. So then I tried making my own kefir. That seemed to fix it back to normalish. Then I PH tested to confirm but it came back as 9 so I tried seed probiotic which is supposed to do something fancy and it seemed to work. I am back to completely normal poops and the PH test is in range.

The idea is that somehow covid is killing the good gut bacteria somehow potentially through some kind of bacteriophage. So until you get rid of that you will have symptoms. Some people mention feeling better when doing a colonoscopy prep but symptoms return after. Also some people seem to be cured from taking random antibiotics.

There is also Stellate Ganglion Block (SGB) or Esophogeal abrasion therapy and HBOT/EWOT. You can build an ewot system with a used oxygen concentrator. I only did EWOT. It helps with exercise. Like before the EWOT I couldn't use a elliptical for 1 minute with it I can go as long as the bag lasts. I have since gotten to the point where I can light exercise/walk as much as I want.

Maybe give patches a try. The link has the best info and the facebook group has a lot of discussion.

My remaining symptoms are fatigue/tinnitus. I have tried so much crap it is insane.
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>>517685884
>I absolutely caught this from a vaxxie, m80
Unfortunately, we have all probably been vaxxed to some level now.

My advice, get right with Jesus and look forward to the end. Try not to focus on the likely dirt nap we will have to take.
>>
>>517692481
Yknow, I have heard that covid can persist by penetrating the gut biofilm. I'll give this some serious thought, appreciated anon. Thank you for the entertainingly graphic detail lmao, I hope you get over the last little hurdle with the tinnitus and fatigue
>>
I had something similar happen to me. Live near London here, happened in mid April. To put it short I woke up with slightly fluctuating red eyes one day that haven't gone away since, and weeks later developed eye floaters, gut issues, unusual bowel movements, random jolts of mild pain and neural tingling that comes and goes at random. I tried oregano oil which helped with the gut somewhat. Everything's healing slowly except for the eyes which are about the same yet they said there's nothing wrong with them. Wish I could help more but yeah
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>>517676376
I have the same thing as him (only not due to Covid and the fatigue/POIS/MCAS version), it’s nearly impossible to get diagnosed. It took me a full decade.
Most doctors are genuinely retarded, especially Jeet and Jews who will just blatantly ignore your issues if it isn’t blatantly obvious immediately.
>>
>>517674667
You don’t have log COVID, you have vaccine damage.

No refunds. This is now a vaxx jams thread:

https://www.youtube.com/watch?v=F_HoMkkRHv8
Reluctantly masked in the testing line,
His heart pumping and thumping in time.
The next stall opens, his car pulls up.
Churning and turning, they tear his nose up.

They socially distance and muzzle to bank,
Breath feeling hot and growing dank.
Trying to spend what little he earns.
Can’t stand waiting, he will never return.

And as his rights diminish, programs break down.
He is not allowed to leave his small town.
His apartment is empty except for one man,
Surviving and striving as best as he can.

Society down and globohomo up,
And all of the goyim: hand out, shaking cup.
And he's masking and testing, the rules become stern.
And then when the mandates come inside he burns.

He's growing resistant.
He's going to sneed.
He’s all alone, all alone
Unwilling to cede.
Because he's facing debasing and clotting and worse,
He's fighting, inciting, and increasingly terse,
He's growing resistant.

Fuck testing, fuck masking, fuck vaccines, fuck Stein,
Undaunted: trespassing; he won’t pay the fine.
Buck-breaking snowflakes: no doubt, no remorse,
Prevailing, derailing the turbo-cuck force.

He’s not gonna take it, the poison they made.
He’s just not gonna take it, he will not be swayed.
'Cause he's bracing, and facing, a satanic force.
A depopulation plan he can not endorse.

Society down and globohomo up,
And all of the goyim: hand out, shaking cup.
He’s not masking nor testing, the rules he will spurn.
Because when the mandates came, inside he burned.

He's growing resistant.
He's going to sneed.
He’s all alone, all alone
Unwilling to cede.
Because he's facing debasing and clotting and worse,
He's fighting, inciting, and increasingly terse,
he's facing debasing and clotting and worse,
He's fighting, inciting, and increasingly terse,
He's growing resistant.
He's going to sneed.
He's growing resistant.
>>
>>517674667
Hey OP try taking some BHT. Yes the preservative. No I’m not joking. About 1mg/ pound of body weight per day will do you. Mix it in some butter and then melt the butter in hot water and drink it. You can order it online. Feel free to read up on the safety of course, but there are people taking that amount daily forever to combat shingles and herpes and they’re fine.
If you ignore this then you don’t really care about getting better and just want to eternally bitch but do what you want.
>>
>>517678050
Anxiety confirmed.
afraid of teflon =anxiety

Also, your ldl should be better controlled. Lower your saturated fat intake, use olive oil and eat sardines not packed in seed oil

And take a few days off from the nac and other sups, fast here and there
>>
>>517695131
PS this will only help if you actually have long COVID and not some other shit going on of course
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>>517690327
>Well there were no spikes above 50-60bpm
I personally had short jumps from 40-50 to like 80-90, but body's response differs.
>SpO2 is always 99% during the day
Levels during waking hours say nothing. Big drops during nighttime are indicative of sleep apnea (not UARS, which is like breathing through a straw).
>Very little dreaming normally, but very vivid if I wake up and go back to sleep
I specifically stopped getting nighttime dreams at like 13 y/o while still getting them when going back to sleep in the morning (I don't know the mechanism behind that).
>Generally my energy is fine, I don't really get fatigued or sleepy during the day.
That's good, although if you're young and healthy those don't have to be the case, could merely feel foggy instead.
>I did have two weeks of inappropriate sleepiness after starting to take benfotiamine
You don't notice a difference in sleepiness with other supplements? I know that B vitamins can tend to cause issues. Those DNA tests for methylation aren't expensive (besides of course giving your precious info to some zog database)
>Head pressure is really behind my face/sphenoid area
Could be related to the trigeminal nerve (bruxism/intercranial/spinal issue/etc). Also could be sinus related (see an ENT) or an eye problem (see an optometrist, not optician). None of those would necessarily produce a headache, but just give a sense of pressure.
>and down into my atlas/cervical.
I don't hear often about head pressure reaching down so low, found anything about that?
>I never usually wake up in the middle of the night, I tend to stay asleep.
And that's with a full 6~9 hours of sleep?

Some more questions: how does your breathing hold up during intense exercise?
Do you have any reflux issues? (there's also a variant called silent reflux)

>I'll still see about a sleep study.
Never a bad idea. You could also skip the doctors and find a used CPAP with a good for detection algorhitm for breathing disruptions, using OSCAR.



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